About Wylder Nation Foundation

Wylder Nation Foundation is a 501(c)3 Non-profit organization

Our Personal Mission

During the process of trying to save our son’s life from Niemann-Pick Disease Type A, a rare and fatal Lysosomal Storage Disorder, we were faced with many different challenges.  The one challenge we were never able to overcome was finding a treatment option for such a rare and unknown disease in the short time we had.

In July 2012, our 3-year-old son Wylder’s time here on earth came to an end, but he left behind lessons of unconditional love and the power of hope.  He also provided us with perspective on how to make a lasting impact on the world by paving the way to help others.

As part of a promise made to our WARRIOR, we formed the Wylder Nation Foundation.  We are taking the lessons learned from his beautiful life and using them as a catalyst for positive change to provide hope in the form of treatment options for other children fighting for their lives.

We invite you to join us in living like a WARRIOR by fighting the fight, standing strong, loving unconditionally, and contributing to this important cause.

Together we will succeed in the fight against Lysosomal Storage Disorders.

 

With Hope Always,  Steven & Shannon Laffoon

Steven, Shannon, and

Wylder James Laffoon

Our Approach

Leadership

Steven Laffoon

Steven Laffoon

Chairman, President & Co-founder

Matthew Coxhead

Matthew Coxhead

Secretary & Director

Scientific and Medical Advisors

Seng Cheng

Seng Cheng, Ph.D.

Sanofi – Rare Diseases Division

Edward H. Schuchman

Edward H. Schuchman, Ph.D.

Mount Sinai School of Medicine

Maria Dolores Ledesma

Maria Dolores (LOLA) Ledesma, Ph.D.

Center of Molecular Biology, Madrid, Spain

Dr. Melissa Wasserstein

Dr. Melissa Wasserstein

Children’s Hospital at Montefiore & Albert Einstein College of Medicine

Current Projects

Gene Therapy Project

Wylder Nation Foundation’s collaboration project between Maria Dolores (LOLA) Ledesma, PH.D – Center of Molecular Biology in Spain and UCSF is not only underway, the very early stages of this project have had a successful outcome.

This projects supports the idea/continuation of a gene therapy treatment as a possibly method to help children with Niemann Pick A, A/B (ASMD). This particular portion of the project explores the idea of getting previously successful systemic gene therapy methods to now be re directed to also help the neurological side of the disease.

This is a initiative is currently fully funded by Wylder Nation Foundation and began in 2015.  To help continue to fund this project and others like it please click the donate button on the right of your screen.

Wylder Nation Foundation continues to ensure that research funds are well spent, and to provide funding that is most likely to accelerate finding an effective therapy for children battling Lysosomal storage disorders.

 

In collaboration with: